Clinically, this is depression topped with a heaping ladle full of chronic pain and a garnish of cognitive loss, life hassles, and other bits and pieces of this and that. Frankly I am tired and warty and grumpy. I am equally tired of putting on a brave face and fighting.
And, in spite of this terrible inertia that grips me, I will. I wasn't sure I had anything left to say on my blog. Then, the other day a friend shared that she had shared my writing with a newly diagnosed friend. If I can let go of the idea that I have to be the poster child for the positive MS patient and share my life, warts and all. Maybe there are words left in me after all.
I can put on a happy face and act all sweetness and light. But, a little like a roman candle, I quickly fade and collapse. A short visit or a quick trip to the store or a walk around the block can lead to hours or days of increased symptoms. The pain I live with never goes away-it gnaws and eats at me all the time. Somehow, I have to find a way to live. That will be my focus.